If you’ve ever wanted to help with some of my research, this is for you. Yes, you! I am asking people in the general public to take a survey (https://bit.ly/GI-Symptom-Survey-All) and share their experiences.
Many people have stomach or digestion problems occasionally. For some people, these symptoms happen more often. In some cases, the symptoms are related to exocrine pancreatic insufficiency (known as EPI or PEI). But to date, there have been few studies looking at the frequency of symptoms – or the level of their self-rated severity – in people with EPI or what symptoms may distinguish EPI from other GI-related conditions.
That’s where this survey comes in! We want to compare the experiences of people with EPI to people without EPI (like you!).
Will you help by taking this survey?
Your anonymous participation in this survey will help us understand the unique experiences individuals have with GI symptoms, including those with conditions like exocrine pancreatic insufficiency (EPI). In particular, data contributed by people without EPI will help us understand how the EPI experience is different (or not).
A note on privacy:
- The survey is completely anonymous; no identifying information will be collected.
- You can stop the survey at any point.
Who designed this survey:
Dana Lewis, an independent researcher, developed the survey and will manage the survey data. This survey design and the choice to run this survey is not influenced by funding from or affiliations with any organizations.
What happens to the data collected in this survey:
The aggregated data will be analyzed for patterns and shared through blog posts and academic publications. No individual data will be shared. This will help fill some of the documented gaps in the EPI-related medical knowledge and may influence the design of targeted research studies in the future.
Feel free to reach out to Dana+GISymptomSurvey@OpenAPS.org.
How else can you help?
Remember, ANYONE can take this survey. So, feel free to share the link with your family and friends – they can take it, too!
Here’s a link to the survey that you can share (after taking it yourself, of course!): https://bit.ly/GI-Symptom-Survey-All