Dana Lewis frequently publishes in traditional, peer-reviewed literature. You can see her Google Scholar profile here, or below for a selection of her articles. Included below are links to the journal sites (with DOI reference links) as well as links to her personal author copies (typically PDFs) of each research article. If you’re looking for an author copy to an article that’s not listed or linked below, please feel to reach out by email (Dana@OpenAPS.org). 

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2024

• “Diabetes Has Minimal Effect On High Gastrointestinal Symptom Burden in Exocrine Pancreatic Insufficiency Based On EPI/PEI-SS Scores”
  DOI: https://doi.org/10.31219/osf.io/hdrn4
  (The above is a pre-print)
• “Novel Exocrine Pancreatic Insufficiency Symptom Score May Improve Screening For Pancreatic Exocrine Insufficiency”
  DOI: https://doi.org/10.31219/osf.io/qpktg
  (The above is a pre-print)
• “Expanding The Scope Of Screening For Pancreatic Exocrine Insufficiency Beyond Traditional At-Risk Groups”
  DOI: https://doi.org/10.1177/14782715241242161
  Author Copy: https://bit.ly/4a3Z4mf
• “An Updated Review of Exocrine Pancreatic Insufficiency Prevalence finds EPI to be More Common in General Population than Rates of Co-Conditions” in Journal of Gastrointestinal and Liver Diseases
  DOI: http://dx.doi.org/10.15403/jgld-5005
  (The above is open access, but a PDF author copy is also stored here.)
  

2023

• “Exocrine Pancreatic Insufficiency Dosing Guidelines for Pancreatic Enzyme Replacement Therapy Vary Widely Across Disease Types” in Digestive Diseases and Sciences
  DOI: https://doi.org/10.1007/s10620-023-08184-w
  Author Copy: https://bit.ly/3v652TU
• “Navigating Ambiguities in Exocrine Pancreatic Insufficiency” – accepted then rejected due to a non-existent conflict of interest so not actually published in Gastroenterology, which you can read about here.
  DOI (pre-print): https://doi.org/10.31219/osf.io/xcnf6
• “Psychosocial Outcomes Among Users and Non-users of Open-Source Automated Insulin Delivery Systems: Findings from a Multinational Survey of Adults with Type 1 Diabetes” in JMIR
  DOI: https://doi.org/10.2196/44002
  (The above is open access, but an author copy is also stored here.)
• “Applied visual art for codesign: three case studies of emergent practices” in Codesign
  DOI: https://doi.org/10.1080/15710882.2023.2284921
  Author Copy: https://bit.ly/3T7bFiy
• “Glucose Variability Analysis in Two Large-Scale and Real-World Data Sets of Open-Source Automated Insulin Delivery Systems” in JDST
  DOI: https://doi.org/10.1177/19322968231198871
  (The above is open access, but an author copy is also stored here.)
• “Breaking a feedback loop: A reassessment of an investigator initiated OS-AID study”
  DOI: http://doi.org/10.1111/dom.15301
  Author Copy: https://bit.ly/46qE4UC
• “Seeing the Forest Through the Trees of Underscreened, Underdiagnosed, and Undertreated EPI” in Pancreas
  DOI: https://doi.org/10.1097/MPA.0000000000002232
  Author Copy: https://bit.ly/3t8LTQg
• “Survey of Pancreatic Enzyme Replacement Therapy Dosing Experiences in Adults with Exocrine Pancreatic Insufficiency” in Healthcare
  DOI: https://doi.org/10.3390/healthcare11162316
  (The above is open access, but an author copy is also stored here.)
• “Harnessing wearables and mobile phones to improve glycemic outcomes with automated insulin delivery”, an invited commentary in The Lancet Digital Health
  DOI: https://doi.org/10.1016/S2589-7500(23)00127-9
  (The above is open access, but an author copy is also stored here.)
• “A Systematic Review of Exocrine Pancreatic Insufficiency Prevalence and Treatment in Type 1 and Type 2 Diabetes” in Diabetes Technology and Therapeutics
  DOI: https://doi.org/10.1089/dia.2023.0157
  Author Copy:  https://bit.ly/3OSCAN3
• “People with diabetes who read their clinicians’ visit notes: Behaviors and attitudes” in Chronic Illness
  DOI: https://doi.org/10.1177/17423953231171890
  Author Copy: https://bit.ly/3HPIY3i
• “Interviews with Indigenous Māori with type 1 diabetes using open-source automated insulin delivery in the CREATE randomised trial” in Journal of Diabetes & Metabolic Disorders
  DOI: https://doi.org/10.1007/s40200-023-01215-3
  (The above is open access, but an author copy is also stored here.)
• “Long-Term Glucose Forecasting for Open-Source Automated Insulin Delivery Systems: A Machine Learning Study with Real-World Variability Analysis” in Healthcare.
  DOI: https://doi.org/10.3390/healthcare11060779
  (The above is open access, but an author copy is also stored here.)
• “Continuous Glucose Monitoring” in The BMJ.
  DOI: https://doi.org/10.1136/bmj-2022-072420
  Author Copy: http://bit.ly/3yayx5b
• “Extended use of an open-source automated insulin delivery system in children and adults with type 1 diabetes: The 24-week continuation phase following the CREATE randomized controlled trial” in Diabetes Technology & Therapeutics
  DOI: https://doi.org/10.1089/dia.2022.0484
  Author Copy (accepted author manuscript): http://bit.ly/3YJixCu

2022

• “Barriers to Uptake of Open-Source Automated Insulin Delivery Systems: Analysis of Socioeconomic Factors and Perceived Challenges of Adults with Type 1 Diabetes from the OPEN Survey” in Diabetes Research and Clinical Practice
  DOI: https://doi.org/10.1016/j.diabres.2022.110235
  Author Copy: http://bit.ly/3XNOKbT
• “Barriers to Citizen Science and Dissemination of Knowledge in Healthcare” in Citizen Science: Theory and Practice
  DOI: https://doi.org/10.5334/cstp.511
  (The above is open access, but an author copy is also stored here.)
• “Personalizing Research: Involving, Inviting, and Engaging Patient Researchers”, an invited chapter in Personal Health Informatics
  DOI: https://doi.org/10.1007/978-3-031-07696-1_17
  Pre-Print Submitted Version Author Copy: http://bit.ly/3Vr0Kyt
• “From Individuals to Systems and Contributions to Creations: Novel Framework for Mapping the Efforts of Individuals by Convening The Center of Health and Health Care ” in Journal of Participatory Medicine
  DOI: https://doi.org/10.2196/39339
  (The above is open access, but an author copy is also stored here.)
• “Open-Source Automated Insulin Delivery in Type 1 Diabetes” in New England Journal of Medicine
  DOI: https://doi.org/10.1056/NEJMoa2203913
  Author Copy: https://bit.ly/NEJM-OSAID-AuthorCopy
• “Practical Guidance on Open Source and Commercial Automated Insulin Delivery Systems: A Guide for Healthcare Professionals Supporting People with Insulin-Requiring Diabetes” in Diabetes Therapy.
  DOI: https://doi.org/10.1007/s13300-022-01299-9
  (The above is open access, but an author copy is also stored here.)
• “Glycemic Variability Assessment in Newly Treated Exocrine Pancreatic Insufficiency With Type 1 Diabetes” in Journal of Diabetes Science & Technology
  DOI: https://doi.org/10.1177/19322968221108414
  Author Copy: https://bit.ly/3P3gd4h
  Supplement Material Author Copy: https://bit.ly/3OJutzn
• “Barriers to Uptake of Open-Source Automated Insulin Delivery Systems: Analysis of Socioeconomic Factors and Perceived Challenges of Caregivers of Children and Adolescents With Type 1 Diabetes from the OPEN Survey” in Frontiers in Clinical Diabetes and Healthcare.
  DOI: https://doi.org/10.3389/fcdhc.2022.876511
  Author Copy: https://bit.ly/3cDTXjE
• “Understanding the needs of people aging with type 1 diabetes: a user-focused research study with prototype diabetes advance directive and setting the stage for future research” in Journal of Diabetes & Metabolic Disorders.
  DOI: https://doi.org/10.1007/s40200-022-01056-6
  (The above is open access, but an author copy is also stored here.)
• “Large-Scale Data Analysis for Glucose Variability Outcomes with Open-Source Automated Insulin Delivery Systems” in Nutrients: Nutrition and Diabetes
  DOI: https://doi.org/10.3390/nu14091906
  (The above is open access, but an author copy is also stored here.)
• “Open-source Web Portal for Managing Self-reported Data and Real-world Data Donation in Diabetes Research: Platform Feasibility Study” in JMIR Diabetes
  DOI: https://doi.org/10.2196/33213
  Author Copy: https://bit.ly/3uIlDt8
• “The Need for Diabetes Advance Directives to Support the Care of People With Diabetes” in Journal of Diabetes Science & Technology
  DOI: https://doi.org/10.1177/19322968221076558
  Author Copy: https://bit.ly/3uDpxVO
• “Language Matters in Diabetes and in Diabetes Science and Research” in Journal of Diabetes Science & Technology
  DOI: https://doi.org/10.1177/19322968221085028
  Author Copy: https://bit.ly/3KFimRC

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2021

• “Quantifying input behaviors that influence clinical outcomes in diabetes and other chronic illnesses” in Journal of Diabetes Science & Technology.
  DOI: https://doi.org/10.1177/19322968211068445
  Author Copy: https://bit.ly/3HktyRS
• “Learning challenges of healthcare professionals supporting open-source automated insulin delivery” in Diabetic Medicine.
  DOI: https://doi.org/10.1111/dme.14750
  Author Copy: https://bit.ly/3ECi9ft
• “We need more patient and public reviews on research papers—and the resources to do so” in BMJ Opinion.
  DOI: https://doi.org/10.1136/bmj.n2891
  Author Copy:https://bit.ly/3r6bqGx
•  “BMJ HCI launches partnership programme for patients and carers as authors and peer reviewers” in BMJ Health & Care Informatics.
  DOI: http://dx.doi.org/10.1136/bmjhci-2021-100471
  Author Copy: https://bit.ly/3pmz13l
•  “Errors of commission or omission: The net risk safety analysis conversation we should be having around automated insulin delivery systems” in Diabetic Medicine.
  DOI: https://doi.org/10.1111/dme.14687
  Author Copy: https://bit.ly/AuthorCopyDanaMLewisErrorsOfCommissionOrOmissionAID
•  “How It Started, How It Is Going: The Future of Artificial Pancreas Systems (Automated Insulin Delivery Systems)” in Journal of Diabetes Science & Technology.
  DOI: https://doi.org/10.1177/19322968211027558
  Author Copy: https://bit.ly/HowItStartedHowItIsGoingAPS_DanaMLewis-AuthorCopy
•  “Multi-Timescale Rhythmicity of Blood Glucose and Insulin Delivery Reveals Key Advantages of Hybrid Closed Loop Therapy” in Journal of Diabetes Science & Technology.
  DOI:https://doi.org/10.1177/1932296821994825
  Author Copy: https://bit.ly/3GdxB1S
• “Why #WeAreNotWaiting—Motivations and Self-Reported Outcomes Among Users of Open-source Automated Insulin Delivery Systems: Multinational Survey” in JMIR.
  DOI: https://doi.org/10.2196/25409
  Author copy: https://bit.ly/3dzt2mb
• “Full closed loop open-source algorithm performance comparison in pigs with diabetes” in Clinical and Translational Medicine.
  DOI: https://doi.org/10.1002/ctm2.387
  Author copy: https://bit.ly/3EmjYwM

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2020

• “Do-It-Yourself Artificial Pancreas System and the OpenAPS Movement” invited book chapter in Endocrinology and Metabolism Clinics of North America.
  DOI: https://doi.org/10.1016/j.ecl.2019.10.005
  Author Copy: https://bit.ly/3rRHVbW
• “For impactful community engagement, check your role” in Communications of the ACM.
  DOI: https://doi.org/10.1145/3401720
  Author Copy: https://bit.ly/3DFlglw
• “Automated Insulin Delivery in Real Life (AID-IRL): Real-World User Perspectives on Commercial AID“ in Journal of Diabetes Science & Technology.
  DOI: https://doi.org/10.1177/1932296820957360
  Author Copy: https://bit.ly/3dEdpKi
• “Efficacy, safety, and user experience of DIY or open-source artificial pancreas systems: a systematic review” in Acta Diabetologica.
  DOI: https://doi.org/10.1007/s00592-020-01623-4
  Author Copy: https://bit.ly/3ybwkpo
• “Patient-Driven Diabetes Technologies: Sentiment and Personas of the #WeAreNotWaiting and #OpenAPS Movements” in Journal of Diabetes Science & Technology.
  DOI: https://doi.org/10.1177/1932296820932928
  Author Copy: https://bit.ly/3dDLZUR
• “Randomised parallel arm open label clinical trial comparing automated insulin delivery using a mobile controller (AnyDANA-loop) with an open-source algorithm with sensor augmented pump therapy in type 1 diabetes.” in Journal of Diabetes & Metabolic Disorders.
  DOI: https://doi.org/10.1007/s40200-020-00547-8
  Author Copy: https://bit.ly/31H8iX7
• “Outpacing the virus: digital response to containing the spread of COVID-19 while mitigating privacy risks” (published White Paper).
  Author Copy: https://bit.ly/3IMYThZ

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2019

• “Why we need a small data paradigm” in BMC Medicine.
  DOI:https://doi.org/10.1186/s12916-019-1366-x
  Author Copy: https://bit.ly/3EHKKjy
• “Glycaemic control in individuals with type 1 diabetes using an open source artificial pancreas system (OpenAPS)” in Diabetes, Obesity & Metabolism.
  DOI: https://doi.org/10.1111/dom.13810
  Author Copy: https://bit.ly/3ybcQ45
• “Real-World Use of Do-It-Yourself Artificial Pancreas Systems in Children and Adolescents With Type 1 Diabetes: Online Survey and Analysis of Self-Reported Clinical Outcomes” in JMIR mHealth and uHealth.
  DOI: https://doi.org/10.2196/14087
  Author Copy: https://bit.ly/3DDB73R
• “Evidence on User-Led Innovation in Diabetes Technology (The OPEN Project): Protocol for a Mixed Methods Study” in JMIR mHealth and uHealth.
  DOI: https://doi.org/10.2196/15368
  Author Copy: https://bit.ly/3dDGLbW
• “History and Perspective on DIY Closed Looping” in Journal of Diabetes Science & Technology.
  DOI: https://doi.org/10.1177/1932296818808307
  Author Copy: https://bit.ly/3oBqgmW
• “Open Humans: A platform for participant-centered research and personal data exploration” in Gigascience.
  DOI: https://doi.org/10.1093/gigascience/giz076
  Author Copy: https://bit.ly/33gsOi9
• “Twitter Analysis of #OpenAPS DIY Artificial Pancreas Technology Use Suggests Improved A1C and Quality of Life” in Journal of Diabetes Science & Technology.
  DOI: https://doi.org/10.1177/1932296818795705
  Author Copy: https://bit.ly/3lQW31f

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2018

• “Opening Up to Patient Innovation” in NEJM Catalyst.
  Author Copy: https://bit.ly/3q0RoeL
•  “Motivations for Participation in an Online Social Media Community for Diabetes” in Journal of Diabetes Science & Technology.
  DOI: https://doi.org/10.1177/1932296817749611
  Author Copy:https://bit.ly/3lSc1Z7
• “Setting Expectations for Successful Artificial Pancreas/Hybrid Closed Loop/Automated Insulin Delivery Adoption” in Journal of Diabetes Science & Technology.
  DOI: https://doi.org/10.1177/1932296817730083
  Author Copy: https://bit.ly/3EGi8av

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2017

• “Real-World Use and Self-Reported Health Outcomes of a Patient-Designed Do-it-Yourself Mobile Technology System for Diabetes: Lessons for Mobile Health” in Diabetes Technology & Therapeutics.
  DOI: https://doi.org/10.1089/dia.2016.0312
  Author Copy: https://bit.ly/3GuPSrL
• “Crowd-Sourced Focus Groups on Twitter: 140 Characters of Research Insight” in Proceedings of Hawaii International Conference on System Sciences (HICSS).
  DOI: https://doi.org/10.24251/hicss.2017.453
  Author Copy: https://bit.ly/3lQ4kCE

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2016

• “Real-World Use of Open Source Artificial Pancreas Systems” in Journal of Diabetes Science & Technology.
  DOI: https://doi.org/10.1177/1932296816665635
  Author Copy: https://bit.ly/31GpPz3

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2015

• Patient Engagement and the Design of Digital Health” in Academic Emergency Medicine.
  DOI: https://doi.org/10.1111/acem.12692
  Author Copy: https://bit.ly/31OkAgd

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2013

• “Social Media Made Easy: Guiding Patients to Credible Online Health Information and Engagement Resources” in Clinical Diabetes.
  DOI: https://doi.org/10.2337/diaclin.31.3.137
  Author Copy: https://bit.ly/3dDc9Hm
• “Learning and living diabetes: development of a college diabetes seminar course” in Diabetes Spectrum.
  DOI: https://doi.org/10.2337/diaspect.24.1.42
  Author Copy: https://bit.ly/3GuhIEC

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2011

• “The multidimensional role of social media in healthcare” in ACM.
  DOI: https://doi.org/10.1145/1978822.1978827
  Author Copy: https://bit.ly/31Q46EF